No one wants to see their child hurt. But when you have a child with a serious medical condition, seeing your child in pain can often be a frequent occurrence. Physical pain is one thing - emotional suffering is another- one I had little experience with until recently. (Yes, I am struggling, so that's why I am writing!) When Xavier was initially diagnosed and treated for brain cancer, he was a baby. He couldn't talk, express his feelings or even remember the trauma he suffered. Now, he is older, smarter and more thoughtful - yet too young to understand. About a month ago we started to see a change in Xavier. He was different. His sleep patterns changed, he was lethargic and other symptoms arose that concerned us. An MRI was immediately scheduled, followed by appointments with multiple doctors. A lumbar puncture has now been scheduled. I am not concerned they will find more cancer. I am not worried there is anything physically wrong. What has me scared and heart broken i...
A journal of my life and the stories of those around me. A novel in the making.
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