Skip to main content

One month since I said goodbye

Tomorrow will mark one month since you left us. It still feels like yesterday. I am having a harder time now accepting that you are gone. I looked at some pictures and video of you just one week before you died. I never would have guessed you would be gone 7 days later. You were happy. You looked good and we had moments of the old Xavier back. 
To think of those days makes it so hard to believe you were so sick that you would take your last breath so soon. To me you were still perfect and there was still hope for recovery or at least that you wouldn't get any worse. I miss you so much Xavier. Hearing your sweet voice only makes me cry more for you, miss you deeper and feel the hurt of the hole in my heart more. Our lives were so much better because of you. 
My selfishness wanted to keep you here no matter how many more surgeries, treatments and disabilities you had. You were still my sweet child I could snuggle and watch sleep at night. 
Now I kiss your urn and say goodnight to only a picture of you. 
But I know in my heart you would have stayed and fought if you could. I know deep down how much you wanted no more of the pain, the side effects and inability to be a normal kid. Keeping you here would have made our pain less but, would have made so much more for you. Especially if the doctors were right that it was the cancer that came back and not just the radiation necrosis we had so hoped would heal. 
Our 7 years together was full of so many ups and down but now the scales have tipped. You now have gone up ... up to a place so beautiful, so perfect and so amazing we can't even imagine. We are down... down here on Earth to grieve because we loved you so much. 
If only we could turn back time and rewrite the ending where there is no ending. 
It's not fair, it's not right I repeat over and over again. This hole in my heart is there to stay. But maybe,  just maybe this is a glimpse of the pain you held inside you as you grieved the life you were robbed of by this cancer. 
Some nights as I lay there crying I can almost feel you touch the top of my head and mess up my hair like you did to make me smile and stop crying. You never liked to see me cry unless we cried together. Those moments were so precious and I only wish you could be here to cry with me now. 

Comments

Popular posts from this blog

Feeding the fire

Buried deep within my soul is a fire. It burns slowly; smouldering inside me day after day. I long for the day when this fire rages again. Like it used to before I smothered it with life. Before kids, before mortgages, bills, illnesses and medical interventions, there was something else on my mind. It was fuelled by almost everything around me and grew stronger with every use. This was something that took me through dark spiralling tunnels, across cobalt blue seas with purple monkeys swimming and up mossy green mountains that whispered cool breezes. It sparked all my  senses and tugged at my heart. It sent shivers down my spine and excitement in my belly. And sometimes it paid. My creativity was ignited by an imagination as unique as every snowflake that falls. The words came to me, the stories flowed and the imagery made sense. I created eloquent editorial and powerful prose. But somehow along the way I lost my creative spirit. I pushed it away. I pushed it down. I pushed d

The aftermath is MESSY

We are on the road to recovery!  Physically, Xavier is improving daily with his regular physio and pure determination only a child possesses. He is learning to walk again and use his left side, all while building back the muscle he lost.  He has at least another month of treatment left, but we are so fortunate we can manage it at home and at a dose that causes fewer side effects than he faced last month.  Xavier is determined and I admire that in children. The lack of self-pity in kids we have seen  on his cancer ward are so inspiring. Instead they use that energy to heal, and set goals for recovery.   Still there are residual symptoms that are concerning. He is choking on liquids more frequently, suffering from reflux and is unable to move his toes on his left foot. Seems minor but as he tries to walk now his toes curl under his foot and trip him. Who knew how important straightening your toes are!  But the lingering side effect of treatment is always the emotional scars

Will cancer or climate change be the end to humanity?

Someday the human race as we know it will not exist. As proven through time, history has a tendancy of repeating itself. Simply put, we haven't always existed so at some point we too will become extinct. I recently watched an intriguing documentary about the earth, its formation and evolution through time. The science of our universe as depicted in the series 'Cosmos' is fascinating - even if regurgitated information from grade school geography and science. The show strives to bring the relevance of the past to the future and how we continue to be affected. http://www.cosmosontv.com/ http://www.sltrib.com/sltrib/entertainment2/57608648-223/cosmos-fox-science-sunday.html.csp It definately got me excited about science and the fact it airs on Fox and produced by Family Guy's Seth McFarlane does not make it any less credible. After watching, I questioned life as we see it today... and how that in billions of years from now the world will be a very different pla