Skip to main content

Survival Strategies

I often get asked: How do you do it?

How do I manage to stay calm when everything around me is uncertain; keep my head on my shoulders and maintain the best "normal"our family can have amongst all of the struggles...

The simple answer is I just do what I have to do. It is during those most difficult times when you just find the strength you never even knew you had.

But there are really four key strategies I use to stay calm, stay sane and positive throughout this journey:

1. I pray.
2. I learn just enough.
3. I check-in with myself regularly.
4. I live life.

Let's break those down (and I strongly encourage anyone to follow these strategies because life is hard no matter what)

1. I pray every day that God takes my fears in exchange for strength.  I pray that He brings comfort to my children and will soothe our aching hearts. And I never forget to thank Him for the blessed life he has given me.

2. I learn and educate myself about what treatments my son will receive and the side effects. I read about his type of cancer and about his emotional well-being. But I don't read too much. I don't get obsessed with statistics and long lists of what ifs. I learn just what I need to know to feel comfortable about making safe decisions surrounding his plan of care.

3. I check-in and attune to my own thoughts and feelings. I ask myself: Am I doing ok? And I answer myself honestly. If I catch myself becoming overwhelmed, I stop and prioritize. I listen to my needs and have discovered ways to help myself during those 'down' times. Writing here is a great tool to check-in and decompress. I never really know what my fingers will type as I sometimes just let the thoughts flow without a filter.

4. I live life and refuse to let the uncertain future prevent me from enjoying today. I still go out for supper and/or drinks with friends. I empathize with my mom group about the daily struggles of parenthood like picky eaters and snotty-nosed kids that won't get to bed. I make time to visit family. Sometimes my kids need me home more than others, but I try to keep a healthy balance of enjoying what I love outside of the home as much as I do at home.

Overall, I don't wait for others to make me happy, or to make things better - I do it myself. I am full of love that pushes me harder and farther than any other emotion ever could.

Comments

Popular posts from this blog

The aftermath is MESSY

We are on the road to recovery!  Physically, Xavier is improving daily with his regular physio and pure determination only a child possesses. He is learning to walk again and use his left side, all while building back the muscle he lost.  He has at least another month of treatment left, but we are so fortunate we can manage it at home and at a dose that causes fewer side effects than he faced last month.  Xavier is determined and I admire that in children. The lack of self-pity in kids we have seen  on his cancer ward are so inspiring. Instead they use that energy to heal, and set goals for recovery.   Still there are residual symptoms that are concerning. He is choking on liquids more frequently, suffering from reflux and is unable to move his toes on his left foot. Seems minor but as he tries to walk now his toes curl under his foot and trip him. Who knew how important straightening your toes are!  But the lingering side effect of treatment ...
Ever since I learned how to write, I have been writing. I am not a professional, nor do I pretend to be. I am not an English major or a published author. I wrote the news for years (almost 10 if you count my years at my college newspaper). But the benefit of writing for me is not for money; it's for pleasure. Writing makes me feel good. Since I was 10 years old I kept a diary. I wrote down my thoughts, my daily activities and everything in between. It was my stress relief - how I figured shit out. I can trace every low point in my life to a time when I stopped writing for pleasure. Pen to a paper, fingers to a keyboard, I have to write. My sanity depends on it. So, here I go. I intend on writing about my life, about stories I have swirling around in my head. And maybe share some excerpts from my diaries as a child. If no one reads this, that's fine. It's not for anyone else but me. But if they do, that's ok too. If I can bring a tear, a laugh or a smile to someone e...

I haven't stopped loving you

I haven’t stopped loving you A letter to my son in heaven on the third anniversary of his death Photo by Mark Garrett/Creative Works Photography Dear Xavier,  I have noticed you don’t visit me as often anymore and I miss your surprise appearances in my dreams. Your sweet little voice I used to hear in my head is now just a whisper I can only hear when I really try to listen.  But, I haven’t stopped loving you.  Days go by and I don’t long for you like I used to. I set the table for three without a second thought. Your presence at the kitchen table feels like a lifetime ago - almost hard to believe it was even real.  But, I haven’t stopped loving you.   We put away some more of your things and rearranged the room we had made for you. Mackenzie now plays there beside a cabinet full of all of your Star Wars characters. There are fewer pictures of just you around the house and a few more of us as a family.  But, I haven’t stop...