Skip to main content

Sometimes I am not OK

Anyone can have it. 

I go through most days not realizing I suffer until a day like today. 

To most it may sound ridiculous, but our dog Charlie was spayed today. Surgery. 


Seeing her drugged up then puke was a trigger. My mind immediately went back to Xavier. 


The vivid memories of bringing him home after surgeries. He puked … a lot and wouldn’t stop and it only made his head pound more after brain surgery. I see myself holding a wash cloth on his head and a bucket in front of him as I dial 911. I was alone and there was no way I could leave him in the backseat while I drove him to emerg. 


He was in so much pain. I was scared so scared but at the time I couldn’t let my emotions out. I never did in the moment. I only acted. 


Maybe I wasn’t compassionate enough during those times as I suppressed the pain. But now I feel it. 


I am sobbing in the bath tub trying not to think about this experience but it won’t stop playing in my head. I feel my breathing get heavier and the emotions I should have felt them course through me like water through a fire house. 


 I know the only way to work through this is to feel it so that’s why I write. It has to be 5 or 6 years ago yet the feelings gush out of me like blood from a brand new wound. 


I question if I did enough. So often I remember pushing these feelings down (there are lots when you go through 7 years of repeated medical trauma). I could let myself believe he was hurting too much or I would break. I just prayed the medication was always working just enough to numb him so I could stay numb. I had to believe it or else I couldn’t be strong for him. 


Now I can’t. 


I never know when or what will trigger me. It happens more often than anyone knows,  but I cope. I tell someone (usually) my hubby and I let myself cry until I can’t anymore. 


Sometimes the memories need help to digest, so I see my wonderful therapist who helps me chew them up. 


That’s how I survive. It’s because of these supports that I keep on living and building a life with only memories of Xavier. Good and bad. They are part of this journey. 



Comments

Popular posts from this blog

Kids need to be kids - even with cancer

No one wants to see their child hurt. But when you have a child with a serious medical condition, seeing your child in pain can often be a frequent occurrence. Physical pain is one thing - emotional suffering is another- one I had little experience with until recently. (Yes, I am struggling, so that's why I am writing!) When Xavier was initially diagnosed and treated for brain cancer, he was a baby. He couldn't talk, express his feelings or even remember the trauma he suffered. Now, he is older, smarter and more thoughtful - yet too young to understand. About a month ago we started to see a change in Xavier. He was different. His sleep patterns changed, he was lethargic and other symptoms arose that concerned us. An MRI was immediately scheduled, followed by appointments with multiple doctors. A lumbar puncture has now been scheduled. I am not concerned they will find more cancer. I am not worried there is anything physically wrong. What has me scared and heart broken i...

The dragon in his head

As far as my son knows, there was a dragon in his head. This dragon was big and scary and made him feel sick. But as far as my son knows, we stomped that dragon out. The idea of Xavier's cancerous tumour being a dragon in his head came from a movie that had been given to me by another mom of childhood cancer. Paul and The Dragon is a powerful 20-minute video of a young boy with cancer. Although it is generic (not about brain tumours), and there are no words, it is incredibly telling. For any family who has been through a similar experience, you will instantly connect with this boy and his family. And for my kids, who are very young and don't exactly understand medical terminology, the story is easy to understand and has provided a great foundation for how to talk to them about Xavier's journey with cancer. The movie was so popular among my kids that it became part of our regular Friday night movie rotation. My son even requested it while he was in the hos...

Feeding the fire

Buried deep within my soul is a fire. It burns slowly; smouldering inside me day after day. I long for the day when this fire rages again. Like it used to before I smothered it with life. Before kids, before mortgages, bills, illnesses and medical interventions, there was something else on my mind. It was fuelled by almost everything around me and grew stronger with every use. This was something that took me through dark spiralling tunnels, across cobalt blue seas with purple monkeys swimming and up mossy green mountains that whispered cool breezes. It sparked all my  senses and tugged at my heart. It sent shivers down my spine and excitement in my belly. And sometimes it paid. My creativity was ignited by an imagination as unique as every snowflake that falls. The words came to me, the stories flowed and the imagery made sense. I created eloquent editorial and powerful prose. But somehow along the way I lost my creative spirit. I pushed it away. I pushed it down. I push...