Skip to main content

I haven't stopped loving you

I haven’t stopped loving you

A letter to my son in heaven on the third anniversary of his death

Photo by Mark Garrett/Creative Works Photography
Dear Xavier, 

I have noticed you don’t visit me as often anymore and I miss your surprise appearances in my dreams. Your sweet little voice I used to hear in my head is now just a whisper I can only hear when I really try to listen. 

But, I haven’t stopped loving you. 

Days go by and I don’t long for you like I used to. I set the table for three without a second thought. Your presence at the kitchen table feels like a lifetime ago - almost hard to believe it was even real. 

But, I haven’t stopped loving you.  

We put away some more of your things and rearranged the room we had made for you. Mackenzie now plays there beside a cabinet full of all of your Star Wars characters. There are fewer pictures of just you around the house and a few more of us as a family. 

But, I haven’t stopped loving you. 

This past year, life has moved forward. I have been working steadily, exercising more regularly (at least up until March) and feeling more settled in our home. I finally felt like I had a grip on this new life. Then the pandemic happened. 

These are interesting times and we have been home more than not with a lot of time to reflect, remember and regret the past. The distractions of normal life are gone and so is that feeling of contentment I had been building. I was better. I had goals, a brighter path ahead of me and now I am angry - angry you are not here to enjoy this precious family time together. 

But, I haven’t stopped loving you. 

Sometimes I don’t want to remember. The memories of our time together still hurt. Old pictures make me cry and thinking of how old you would be now makes my stomach churn. There are days I push thoughts of you away. And there are times when I want to run away from everything that reminds me of you. I am tired of crying. 

But, I haven’t stopped loving you. 

I don't hear your name spoken as much anymore, but I have watched your sister grow, your dad find himself again and our relationships change. I am learning that no matter how we step forward or what our future looks like, you Xavier, will always be in my heart.

My world is different and I am no longer afraid of what it has become because through it all, I haven’t stopped loving you. 

Comments

  1. So raw, truthful, powerful and heart wrenching all at the same time.

    ReplyDelete

Post a Comment

Popular posts from this blog

The dragon in his head

As far as my son knows, there was a dragon in his head. This dragon was big and scary and made him feel sick. But as far as my son knows, we stomped that dragon out. The idea of Xavier's cancerous tumour being a dragon in his head came from a movie that had been given to me by another mom of childhood cancer. Paul and The Dragon is a powerful 20-minute video of a young boy with cancer. Although it is generic (not about brain tumours), and there are no words, it is incredibly telling. For any family who has been through a similar experience, you will instantly connect with this boy and his family. And for my kids, who are very young and don't exactly understand medical terminology, the story is easy to understand and has provided a great foundation for how to talk to them about Xavier's journey with cancer. The movie was so popular among my kids that it became part of our regular Friday night movie rotation. My son even requested it while he was in the hos...

The aftermath is MESSY

We are on the road to recovery!  Physically, Xavier is improving daily with his regular physio and pure determination only a child possesses. He is learning to walk again and use his left side, all while building back the muscle he lost.  He has at least another month of treatment left, but we are so fortunate we can manage it at home and at a dose that causes fewer side effects than he faced last month.  Xavier is determined and I admire that in children. The lack of self-pity in kids we have seen  on his cancer ward are so inspiring. Instead they use that energy to heal, and set goals for recovery.   Still there are residual symptoms that are concerning. He is choking on liquids more frequently, suffering from reflux and is unable to move his toes on his left foot. Seems minor but as he tries to walk now his toes curl under his foot and trip him. Who knew how important straightening your toes are!  But the lingering side effect of treatment ...
Ever since I learned how to write, I have been writing. I am not a professional, nor do I pretend to be. I am not an English major or a published author. I wrote the news for years (almost 10 if you count my years at my college newspaper). But the benefit of writing for me is not for money; it's for pleasure. Writing makes me feel good. Since I was 10 years old I kept a diary. I wrote down my thoughts, my daily activities and everything in between. It was my stress relief - how I figured shit out. I can trace every low point in my life to a time when I stopped writing for pleasure. Pen to a paper, fingers to a keyboard, I have to write. My sanity depends on it. So, here I go. I intend on writing about my life, about stories I have swirling around in my head. And maybe share some excerpts from my diaries as a child. If no one reads this, that's fine. It's not for anyone else but me. But if they do, that's ok too. If I can bring a tear, a laugh or a smile to someone e...