Skip to main content

I am trying...

This year I am really trying to put the Merry back in Christmas.

I fought through the tears to decorate the house. I found the energy to bring back the Elf on the Shelf and I attempted to decorate the Christmas tree this year.  I even went shopping for gifts on several occasions. I did none of these things last year.

But still, I struggle.

The countdown on our chalkboard says three days till Christmas, but it still feels like any other day. I still cry, I still hurt and I still yearn for the days when we spent Christmas altogether. The Christmases where my son could lick the spoon from my Christmas baking and hang up his own ornaments and unwrap his gifts. The mornings where Mackenzie and Xavier would race out of bed to find Ginger, yelling at each other not to find him before the other. I tell myself every day to be thankful for what I have.

But still, I struggle.

There were months where I could fall asleep easily and slept through the night. But for whatever reason, my peaceful slumbers have been replaced with intrusive thoughts this month. I fear sleep. I am exhausted and anxious to rest, but as soon as I do those thoughts, those terrible memories and feelings take me places I don't want to go. I try to stop them. I tell them to go away, but they always find a way back into my head. So, I lay awake. My heart pounding, the tears falling and my mind racing until it stops. I sleep. Then wake again to do it all over again. Then get up, go through the motions of another day and do it all again.

As much as we try to be happy, and we try to make Christmas merry, the grief sneaks up on us. We can't avoid it, we can't snuff it or bury it. Instead, we embrace it along with the joy we have found in the season. I am learning how the two coincide and they really can get along. It's taking the good with the bad. It's about moving forward and not pretending it doesn't hurt or wallowing in the bad.

It's just how it is now.



Comments

Popular posts from this blog

The aftermath is MESSY

We are on the road to recovery!  Physically, Xavier is improving daily with his regular physio and pure determination only a child possesses. He is learning to walk again and use his left side, all while building back the muscle he lost.  He has at least another month of treatment left, but we are so fortunate we can manage it at home and at a dose that causes fewer side effects than he faced last month.  Xavier is determined and I admire that in children. The lack of self-pity in kids we have seen  on his cancer ward are so inspiring. Instead they use that energy to heal, and set goals for recovery.   Still there are residual symptoms that are concerning. He is choking on liquids more frequently, suffering from reflux and is unable to move his toes on his left foot. Seems minor but as he tries to walk now his toes curl under his foot and trip him. Who knew how important straightening your toes are!  But the lingering side effect of treatment ...

The dragon in his head

As far as my son knows, there was a dragon in his head. This dragon was big and scary and made him feel sick. But as far as my son knows, we stomped that dragon out. The idea of Xavier's cancerous tumour being a dragon in his head came from a movie that had been given to me by another mom of childhood cancer. Paul and The Dragon is a powerful 20-minute video of a young boy with cancer. Although it is generic (not about brain tumours), and there are no words, it is incredibly telling. For any family who has been through a similar experience, you will instantly connect with this boy and his family. And for my kids, who are very young and don't exactly understand medical terminology, the story is easy to understand and has provided a great foundation for how to talk to them about Xavier's journey with cancer. The movie was so popular among my kids that it became part of our regular Friday night movie rotation. My son even requested it while he was in the hos...
Ever since I learned how to write, I have been writing. I am not a professional, nor do I pretend to be. I am not an English major or a published author. I wrote the news for years (almost 10 if you count my years at my college newspaper). But the benefit of writing for me is not for money; it's for pleasure. Writing makes me feel good. Since I was 10 years old I kept a diary. I wrote down my thoughts, my daily activities and everything in between. It was my stress relief - how I figured shit out. I can trace every low point in my life to a time when I stopped writing for pleasure. Pen to a paper, fingers to a keyboard, I have to write. My sanity depends on it. So, here I go. I intend on writing about my life, about stories I have swirling around in my head. And maybe share some excerpts from my diaries as a child. If no one reads this, that's fine. It's not for anyone else but me. But if they do, that's ok too. If I can bring a tear, a laugh or a smile to someone e...