I can't keep track of time. For some reason I have been stuck back in the middle of July but somehow time keeps moving forward.
Lately it's the little things that get me ... like having the last kind of ice cream Xavier ever ate. He wasn't well when he had it but he still enjoyed what he could of it.
No kid should ever have to have their last ice cream at 7 years old.
Then the sad thought that when Mackenzie comes home from a night at her grandparents that Xavier won't be coming home with her. He hasn't just been gone for a visit. He is gone forever.
How do you choose God what child will get cancer and die? If you have our lives planned our paths already laid out how do you pick... do you ask them before they come to earth? Do you give them a choice at time of death? I don't understand how such a loving God could allow so many children sick and die. I get that it is a much bigger picture and everything matters and is connected to the life of another person... so if so many kids weren't dying of cancer those scientists and researches wouldn't have purpose or find that cure to help so many. But their deaths are a sacrifice for someone else's life... it sets off chain reaction the ripple effect. So again how do you choose which lives will be affected?
My realities are so messed up. Now when I look at pictures of us all together it feels like a dream. Having that life with you seems so distant already that it feels like it was never real but only in a dream I had once.
I dream now of a life with you forgetting we had one.
The longer we are without you the more that life feels like it's fading and hurts more because it's forcing me to live in this new reality without you. I am trying so hard to hold on to you it's not healthy I know because it will keep me suffering
I forget that there was more in my life that made me happy than just you.
When I look at your picture from years ago when you were well and looked like the old Xavier I can do it without crying at least for a few moments. But one glance at a more recent picture of you and I am full of tears. I hardly recognize you after seeing pictures of you well. I didn't realize how much you had changed because I was with you as you changed and we didn't usually have so many pictures around from years before. It makes me so sad that you had to go away even before you went away.
"The goal of grief is to say goodbye to our child on all levels, to embrace the contribution our child was able to make to life and to exercise gratitude for the life that was, albeit all too short. To identify and express anger as a natural, human response is one of the steps on the way to recovery."
I am sick with emotion.
As the day goes on I fill with anxiety, wanting wishing for the day to be over. It happens day after day the feeling washes over me again as I yearn for this day to be over again and again.
My days are long and hard only tiny slits of sun peak through
My mind is racing yet to an outsider I am hardly moving I am left with no energy as I try to make sense of the incomprehensible
I hold in so many tears yet it feels as though I cry waterfalls every day
I wonder how others have made it through
Mark just found a cassette tape in his garage stereo and it was Led Zeppelin ... of course Xavier's favourite
The simplest things bring a lump in my throat like watching a fluffy feather float from the tree to lay on the ground in front of the kids playset. My thought immediately drifts to Xavier in Heaven.
Today we head out for our first family vacation without our whole family. Going away without Xavier seems so wrong and fills me with so many mixed emotions. It's a step in the right direction towards our new life without him physically here but not without much pain.
To say I have bad days is an understatement. These so called bad days split me open again to the very core. I feel every fibre of my heart breaking apart again. I sob uncontrollably and I lay in fetal position wishing I could go be with Xavier. It's in those moments that I don't think I can do this... the pain is so great I lose all sense of control. The hope I may have had yesterday dies and I wonder how others have survived this misery, this torture we know as the watered down euphemism grief!
Vacation without you
It's been so hard to enjoy our only summer vacation but it's too hard without you. You have been on my mind every minute here.
Had a dream last night about a big tornado. The weather was terrible but as we (was with friends but could exactly tell who) looked beyond the darkening clouds it looked light. We watched and saw the dark blue and grey clouds with pinkish orange sky underneath. Long fingerlings shot out from the bubbling cloud reaching both up to the heavens and to the side of the cloud before appearing to come down. At that point we ran to the basement for safety. It didn't take long and the storm was over and beyond was sunlight and calm.