Skip to main content

Excuse my children's extreme behaviour

Many thoughts are consuming me tonight after the emotional turmoil our family endured today on this first MRI since Xavier's treatment ended. 

I have learned a lot on this journey (an much more to learn) through therapy and continuously reading and researching. And if there is a positive in this nightmare, it's that I am becoming the best I can be - a better person as we continue this difficult path.

One thing I have learned is that grief is not something you only experience from the loss of a physical being. Grief can be experienced in many situations including the loss of an expectation that will never be. We are grieving. We are grieving that normal life we anticipated. Our reality will never be what we expected nor will it be like any others. Our lives, and us as individuals have been shaped and grown in many ways from our experience. But for this we must also grieve. 

In time we have to reach acceptance that our lives are different, our fears are different and our children are different. 

In thinking about this, I also thought about our role as parents. We have an abnormal situation, children who have suffered beyond their ability to cope and yet we have tried to parent them as if they were kids who have never experienced trauma. Why... denial because we have yet to complete the cycle of grief. 

It is a struggle to accept, but we are learning how to best support our family and what kind of parents we want to be. 

The first step is to throw out the strategies we are accustomed to from our own childhoods. They do not work nor are they "our" family's approach. WE must develop a new parenting style: The Mark and Carla way of parenting Mackenzie and Xavier. It is essential to our healing and specific to our needs. 

My promise as a parent:

1. The Inside Out Strategy
I will address my child's emotional needs before their outward behaviour (unless their safety is in immediate danger). I will focus not on what the behaviour is but first the why. The what can be addressed after the situation has been diffused and we are calm and ready to listen. The emotional state is not an excuse for bad behaviour, but it cannot be adequately addressed (long-term) without connecting with the emotional cause. Heal the inside and then the out. 

2. Nature vs Nurture
I will nurture my child's heart and be attuned to and validate each and every one of their feelings; good bad or ugly. I will tell them it's ok to feel whatever they are feeling. 

3. Guiding Principle
I will empower my child to make the right choice by encouraging them to think independently. I will guide them with praise and model appropriate behaviour. I will NOT be authoritative or manipulative to achieve compliance. 

4. In all Respect
I will respect my child and respond to their needs without judgement. I will appreciate that I am the adult in the relationship and any expectations I may have as to how a 6 yr old or 7 yr old etc. ought to act, are irrelevant. 

(Our kids may be 6 in age, but their emotional maturity has been stunted by the trauma.) 

It's not an easy road, especially when your own emotional state is still healing from past scars. And we will slip up. But together our family will become stronger than ever!

Comments

Popular posts from this blog

Feeding the fire

Buried deep within my soul is a fire. It burns slowly; smouldering inside me day after day. I long for the day when this fire rages again. Like it used to before I smothered it with life. Before kids, before mortgages, bills, illnesses and medical interventions, there was something else on my mind. It was fuelled by almost everything around me and grew stronger with every use. This was something that took me through dark spiralling tunnels, across cobalt blue seas with purple monkeys swimming and up mossy green mountains that whispered cool breezes. It sparked all my  senses and tugged at my heart. It sent shivers down my spine and excitement in my belly. And sometimes it paid. My creativity was ignited by an imagination as unique as every snowflake that falls. The words came to me, the stories flowed and the imagery made sense. I created eloquent editorial and powerful prose. But somehow along the way I lost my creative spirit. I pushed it away. I pushed it down. I pushed d

The aftermath is MESSY

We are on the road to recovery!  Physically, Xavier is improving daily with his regular physio and pure determination only a child possesses. He is learning to walk again and use his left side, all while building back the muscle he lost.  He has at least another month of treatment left, but we are so fortunate we can manage it at home and at a dose that causes fewer side effects than he faced last month.  Xavier is determined and I admire that in children. The lack of self-pity in kids we have seen  on his cancer ward are so inspiring. Instead they use that energy to heal, and set goals for recovery.   Still there are residual symptoms that are concerning. He is choking on liquids more frequently, suffering from reflux and is unable to move his toes on his left foot. Seems minor but as he tries to walk now his toes curl under his foot and trip him. Who knew how important straightening your toes are!  But the lingering side effect of treatment is always the emotional scars

Will cancer or climate change be the end to humanity?

Someday the human race as we know it will not exist. As proven through time, history has a tendancy of repeating itself. Simply put, we haven't always existed so at some point we too will become extinct. I recently watched an intriguing documentary about the earth, its formation and evolution through time. The science of our universe as depicted in the series 'Cosmos' is fascinating - even if regurgitated information from grade school geography and science. The show strives to bring the relevance of the past to the future and how we continue to be affected. http://www.cosmosontv.com/ http://www.sltrib.com/sltrib/entertainment2/57608648-223/cosmos-fox-science-sunday.html.csp It definately got me excited about science and the fact it airs on Fox and produced by Family Guy's Seth McFarlane does not make it any less credible. After watching, I questioned life as we see it today... and how that in billions of years from now the world will be a very different pla