Skip to main content

Sometimes I am not OK

Anyone can have it. 

I go through most days not realizing I suffer until a day like today. 

To most it may sound ridiculous, but our dog Charlie was spayed today. Surgery. 


Seeing her drugged up then puke was a trigger. My mind immediately went back to Xavier. 


The vivid memories of bringing him home after surgeries. He puked … a lot and wouldn’t stop and it only made his head pound more after brain surgery. I see myself holding a wash cloth on his head and a bucket in front of him as I dial 911. I was alone and there was no way I could leave him in the backseat while I drove him to emerg. 


He was in so much pain. I was scared so scared but at the time I couldn’t let my emotions out. I never did in the moment. I only acted. 


Maybe I wasn’t compassionate enough during those times as I suppressed the pain. But now I feel it. 


I am sobbing in the bath tub trying not to think about this experience but it won’t stop playing in my head. I feel my breathing get heavier and the emotions I should have felt them course through me like water through a fire house. 


 I know the only way to work through this is to feel it so that’s why I write. It has to be 5 or 6 years ago yet the feelings gush out of me like blood from a brand new wound. 


I question if I did enough. So often I remember pushing these feelings down (there are lots when you go through 7 years of repeated medical trauma). I could let myself believe he was hurting too much or I would break. I just prayed the medication was always working just enough to numb him so I could stay numb. I had to believe it or else I couldn’t be strong for him. 


Now I can’t. 


I never know when or what will trigger me. It happens more often than anyone knows,  but I cope. I tell someone (usually) my hubby and I let myself cry until I can’t anymore. 


Sometimes the memories need help to digest, so I see my wonderful therapist who helps me chew them up. 


That’s how I survive. It’s because of these supports that I keep on living and building a life with only memories of Xavier. Good and bad. They are part of this journey. 



Comments

Popular posts from this blog

The aftermath is MESSY

We are on the road to recovery!  Physically, Xavier is improving daily with his regular physio and pure determination only a child possesses. He is learning to walk again and use his left side, all while building back the muscle he lost.  He has at least another month of treatment left, but we are so fortunate we can manage it at home and at a dose that causes fewer side effects than he faced last month.  Xavier is determined and I admire that in children. The lack of self-pity in kids we have seen  on his cancer ward are so inspiring. Instead they use that energy to heal, and set goals for recovery.   Still there are residual symptoms that are concerning. He is choking on liquids more frequently, suffering from reflux and is unable to move his toes on his left foot. Seems minor but as he tries to walk now his toes curl under his foot and trip him. Who knew how important straightening your toes are!  But the lingering side effect of treatment ...
Ever since I learned how to write, I have been writing. I am not a professional, nor do I pretend to be. I am not an English major or a published author. I wrote the news for years (almost 10 if you count my years at my college newspaper). But the benefit of writing for me is not for money; it's for pleasure. Writing makes me feel good. Since I was 10 years old I kept a diary. I wrote down my thoughts, my daily activities and everything in between. It was my stress relief - how I figured shit out. I can trace every low point in my life to a time when I stopped writing for pleasure. Pen to a paper, fingers to a keyboard, I have to write. My sanity depends on it. So, here I go. I intend on writing about my life, about stories I have swirling around in my head. And maybe share some excerpts from my diaries as a child. If no one reads this, that's fine. It's not for anyone else but me. But if they do, that's ok too. If I can bring a tear, a laugh or a smile to someone e...

I haven't stopped loving you

I haven’t stopped loving you A letter to my son in heaven on the third anniversary of his death Photo by Mark Garrett/Creative Works Photography Dear Xavier,  I have noticed you don’t visit me as often anymore and I miss your surprise appearances in my dreams. Your sweet little voice I used to hear in my head is now just a whisper I can only hear when I really try to listen.  But, I haven’t stopped loving you.  Days go by and I don’t long for you like I used to. I set the table for three without a second thought. Your presence at the kitchen table feels like a lifetime ago - almost hard to believe it was even real.  But, I haven’t stopped loving you.   We put away some more of your things and rearranged the room we had made for you. Mackenzie now plays there beside a cabinet full of all of your Star Wars characters. There are fewer pictures of just you around the house and a few more of us as a family.  But, I haven’t stop...