Skip to main content

It's Halloween: Diary of a Grieving Mom

October 31, 2017

At 7:30 a.m. I was already crying. Seeing Mackenzie's excitement about today struck a chord. As much as I wanted to feel her excitement, I could only feel sadness. Xavier loved Halloween. Together he and Mackenzie would plan for weeks even months about Halloween. Xavier loved to dress up in general and he couldn't contain himself on a day dedicated to dressing up. He would go online searching for costumes over and over again. He would pick one then change his mind again. By the time the day actually came, we had already bought him multiple costumes to choose from. I miss watching the two of them get ready and then parade around the house showing off their costumes.

And it wasn't just the costumes either. He loved to decorate the house inside and out. While Mark took care of carving pumpkins with the kids, Xavier and I would always take a trip to the dollar store for lots of creepy decorations. He would have his hands full in seconds. I couldn't bring myself to go this year. Mackenzie used what we had from other years to decorate her room. Even walking through the scary aisle at Walmart made me cry. This day was probably just as exciting for him as Christmas.
I don't want to do it without him. I hate holidays right now. They ignite so much pain thinking of what he is missing and what we are all missing without him here. Days like this it's hard to not think about him non-stop.

I remember last year like it was yesterday. He had a really awesome costume that even riding in his wheelchair it still looked so cool. We went out with his "girlfriend" and family. It was a nice night and we stayed out later than any other year. He just didn't want to stop, even though he could barely walk. We visited friends, teachers, old babysitters... so many special people he knew. And several times he remarked: "This is the BEST Halloween EVER." Little did we know it would be his last.

I am thankful for this memory and can't help but think the powers at be were watching over us that night making sure it was a perfect night.


Comments

Popular posts from this blog

The aftermath is MESSY

We are on the road to recovery!  Physically, Xavier is improving daily with his regular physio and pure determination only a child possesses. He is learning to walk again and use his left side, all while building back the muscle he lost.  He has at least another month of treatment left, but we are so fortunate we can manage it at home and at a dose that causes fewer side effects than he faced last month.  Xavier is determined and I admire that in children. The lack of self-pity in kids we have seen  on his cancer ward are so inspiring. Instead they use that energy to heal, and set goals for recovery.   Still there are residual symptoms that are concerning. He is choking on liquids more frequently, suffering from reflux and is unable to move his toes on his left foot. Seems minor but as he tries to walk now his toes curl under his foot and trip him. Who knew how important straightening your toes are!  But the lingering side effect of treatment ...
Ever since I learned how to write, I have been writing. I am not a professional, nor do I pretend to be. I am not an English major or a published author. I wrote the news for years (almost 10 if you count my years at my college newspaper). But the benefit of writing for me is not for money; it's for pleasure. Writing makes me feel good. Since I was 10 years old I kept a diary. I wrote down my thoughts, my daily activities and everything in between. It was my stress relief - how I figured shit out. I can trace every low point in my life to a time when I stopped writing for pleasure. Pen to a paper, fingers to a keyboard, I have to write. My sanity depends on it. So, here I go. I intend on writing about my life, about stories I have swirling around in my head. And maybe share some excerpts from my diaries as a child. If no one reads this, that's fine. It's not for anyone else but me. But if they do, that's ok too. If I can bring a tear, a laugh or a smile to someone e...

I haven't stopped loving you

I haven’t stopped loving you A letter to my son in heaven on the third anniversary of his death Photo by Mark Garrett/Creative Works Photography Dear Xavier,  I have noticed you don’t visit me as often anymore and I miss your surprise appearances in my dreams. Your sweet little voice I used to hear in my head is now just a whisper I can only hear when I really try to listen.  But, I haven’t stopped loving you.  Days go by and I don’t long for you like I used to. I set the table for three without a second thought. Your presence at the kitchen table feels like a lifetime ago - almost hard to believe it was even real.  But, I haven’t stopped loving you.   We put away some more of your things and rearranged the room we had made for you. Mackenzie now plays there beside a cabinet full of all of your Star Wars characters. There are fewer pictures of just you around the house and a few more of us as a family.  But, I haven’t stop...